Living Hazzardously

Little pieces of our journey with Jesus

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Fairytales, unkept promises, like Disneyland.

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The other day Jess and I were chatting and reminiscing about our previous lives. I wonder if other couples talk about “Before we met”. Do other blended family couples pretend the past has simply vanished? Or are we different, I don’t know. In our conversation I mentioned I never got to take the boys on a “fairytale vacation”, like Disneyland or a cruise or some far off land where every families dreams come true… I glanced at Jess, just in time, to see her face turn down and she looked so sad… I will divulge why in a few paragraphs, but first, I will dig into my fairytale vacation. 

What was my “Fairytale” trip with my three sons? I had so many trips planned, some big, some small but all were amazing (in my minds eye). Do you have a fairytale trip? Or maybe life beat you down like it did to me and you never fully recovered from that beating? Probably my biggest fairytale trip was driving and camping to the east coast and west coast… East to Washington DC and Maine for National history then drop down to Tennessee, the Blue ridges, Kentucky and back up to good old Minnesota… West through Montana to Washington to see the ocean and swing south to see the Redwoods, Grand Canyon, Devils Tower, Mount Rushmore and back up to the cities.  

My Trips were always the “natural” wonders and places of historical relevance. I never wanted to see Disneyland (and to be honest, it’s repulsive to think about going there now). Jess however had a different set of dreams… The one thing in common was a desire to share the world with our children, being with them and growing together. Jess had grandparents that took the 3 sisters on trips all over… These trips are still invoking fond memories for Jess. These trips are more than just a vacation, they took Jess on a childhood wonderland that nurtured her innocence, satisfied her adventurous side and filled her with years of joy filled memories.

I too have “fond” memories of trips my father took us on… I never had trips with the Grands. My trips involved a hot car, laying on the floor of the back seat right above the exhaust discharge and being shoved into the back window deck of a 1969 Ford Fairlane 2-door… 5 kids, mom and dad and my smelly dog named Tobias Winslow. Coat hangers were “professionally” installed and held up the exhaust that contained more soup cans that obviously exceeded the original equipment specs. I would say it hardly leaked much exhaust into the passenger compartment, never making us sick. The gas tank fell out rounding the corner of Broadway and Penn Ave on our way back from the Salvation Army Store (collecting more of my fathers hoarder stuff) and more “MacGyver creativity” with wire coat hangers to make the perfect long term repair. But that is yet another story.

Back to Jess… you see, Jess had made a promise to Sam, a mothers promise to her son that when he could use the “potty” like a big boy, they would take a trip to the most magical place in all the world. A place that held mystery, magic and hope… The dream of all dreams where fantasy comes true… As Walt himself once said “I think most of all what I want Disneyland to be is a happy place… where parents and children can have fun, together”

This “Fairytale” was about to start slipping away, a journey of around 20 years… A dream that was murdered by the heartless folds of life. Year after year, Jess held on to this promise, never intending to “skip out”. Never intending to make a promise that she would never keep. As Al grew, his behaviors became a daily management task, a full time job! So big was the job of being Als mom, that she soon fell into a serious depression. So deep that it kept her locked into the room marked “SURVIVAL ONLY” for many years. The hard decision was made, she had to separate Sam from Al, to keep Sam safe.

Doing the only thing she could, she moved blocks away from her baby boy, keeping in mind the promise of Disneyland, putting Sam’s safety ahead of herself and providing everything Al needed. Jess had now laid down her life for her two little boys, putting them first in everything. Torn in half, broken, beaten and collapsing under the weight, but holding onto the Hope of Jesus… As she watched her dream of Disneyland slipping further away, she settled into a reality that hurt and could not be avoided. Disneyland was slipping further away from reality. 

Jess and I don’t plan on giving up our dreams of travel across the USA, but it gets complicated. We have our shared dreams, our “places to go” lists. Our question is “HOW”. We have tried so many different ideas on how to make our trips a reality, but there is so much we still need to iron out… It may be hard for many to imagine, but traveling with Al is way more complicated than traveling with a baby in a car seat. Or as my father did, having us laying on the floor or on the ledge of the back window. Travel with Al is actually always “traveling for Al”. I can see how Disneyland was never a viable option, I have learned so much about the stress families have with a special needs child… I never would have guessed it could be this hard. Don’t get me wrong, Al is a blessing and we love him, I don’t regret for a minute being his provider, parent and teacher… But, to be completely transparent, he is not easy to take care of.

I bet you thought this was about Disneyland… It is actually about the broken heart of a mother?

Sam is buried only a couple miles down the road, Jess likes to stop in from time to time to sit, remember and pretend to have a conversation with Sam. I am sure she likes to imagine Sam running around Disneyland, smiling, eating too much junk food and just being her baby boy that learned how to “Potty like a big boy”…

The dream is never going to become reality now. The stress of losing a son when he is only 22. Breaking a life long promise. Somedays, this would be more than enough to put the strongest of men into bed, weeping for days… Jess is amazing, strong, resilient and capable. Although the “fantasy” trip to Disneyland has been retired, she has found a new hope, a new dream and a new reason to pursue life.

Grandbabies! Sophia, Sadie and the one due in April… Sam’s place. The Redwood forest, the Gulf stream waters. The dreams are different now. The Lord always has and will continue to sustain us, comfort us and give us HOPE, hope comes from God. 

I was told only babies cry, so I guess I am the biggest baby of all. One day I want to write about why I always joke when emotions are high. If you have ADHD, you may very well be very empathetic, you can feel the pain of others, sometimes more than the person who is feeling the emotions… I think that’s me.

May Gods presence be with you today and always, Charlie.

Me First Jack!

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From time to time, I need a reminder of the GOODNESS of GOD… why? Well, it’s simple, I am a selfish creature and I like to be the center of the world with everything around me serving my every desire… oh, you think you are different? Think about this… You disagree, by very definition you have decided you are different, which means you believe you are different… ME, ME, ME Like agent smith from the Matrix.

Doesn’t our self-narrative of being different simply show we are serving ourselves? Providing and giving ourselves a different narrative? Or maybe climb up on top of our mountain and proclaim, “I can objectively state I am different because I have a perfect knowledge of myself!” …. You, see? No matter how we slice the cake, it comes right back to “Me” & “I” statements. My challenge to you (and myself) is to stop putting yourself, your narrative and your life ahead of others and become fully self-sacrificial… it’s impossible, if you are being honest. 

The lyrics of a great song are listed below. I don’t give “credits” of this song, nor do I claim credits, in the end, this seems like some crazy hangup in this world. Like sources always need to be cited to be credible in a statement. Like somehow, citing credits gives truth more value, because you can name an authority… Give to Caesar what is Caesar’s, and give to God what is God’s. Give the claim of goodness to God.

Life is easy, when you’re up on the mountain

And you’ve got peace of mind, like you’ve never known

But things change, when you’re down in the valley

Don’t lose faith, for you’re never alone

(I could almost hear you sing, let’s try again)

(That was a little better)

Ok, let’s turn the table, have you ever thought this:

Your life is so easy, you really have nothing to complain about.

You are so blessed, don’t look a gifted horse in the mouth.

You didn’t have a rough childhood, you had it so easy.

Why are you such a Debbie downer?

Statements like these are seldom placed on the “mirror of self-reflection”. They nearly exclusively prove how another person doesn’t measure up… how often do we self-reflect on how much we think about ourselves? Putting ourselves at the center of our world? Think about a person that thinks of themself nearly all the time. This person seemingly can only see the world as “what can I get?” or “what do I deserve?” or maybe “How does this benefit me?” It’s difficult to live with this type of person! It’s even more difficult to constantly serve this type of person and never feel some need and desire for self-preservation, at least at some level… What if I am this person? What if you are this person?

What does it mean to “Be more God-like?” For God so loved the world that he gave…. In the beginning, God created…. The two greatest examples of God’s selfless character displayed in scripture show “Selfless giving”.  God created from nothing, all that exists. God giving from himself the only son… sacrifice is a Godly thing, and giving is how we find value in ourselves. A focus on self is the pathway to anxiety, depression and a tortured soul. 

Al may not be able to “give” Jess and myself much of anything.  In fact, he demands form us a 24-7 stream of attention, provision, supply & purpose. We find we are constantly giving, answering the same questions 100 times (I am not joking), providing direction, reminders every meal (how to not spill food, set the table, wipe the table…  endlessly at every meal) Supplying all that he has, wants and needs…. A constant flow out of ourselves and to him, like an ever-consuming fire that is never satisfied… BUT WAIT, what does Al give us? He gives us an endless resource to give to! He is somebody in need. In him we find joy and meaning in life by putting ourselves second. (Jess has perfected this, I’m still learning) My sweet mother showed me many years ago “You cannot out give God”… reflect on that a second. You can’t out give God…

This leads me to our big reveal, our next chapter in life. This big reveal that some folks already know about, but others may only suspect something is going on, and still others will simply state “YOU are CRAZY”.  This will certainly earn our name “LivingHazzardously”

My next blog post is a post YOU DO NOT WANT TO MISS!!! Jess and I have been working on a plan that we are hoping will come to play out and truly start on or before April 29.

Did I mention:

YOU DO NOT WANT TO MISS MY NEXT BLOG POST???!!!

Follow us as we kick off our calling from God and start a new chapter in living for others! Giving our Time, Talent and Touch. Please lift us in prayer as we wait for the Lord.  

May the Lord bless you this day as you find value in serving others. 

James 1:27

Pure and undefiled religion in the sight of our God and Father is this: to visit orphans and widows in their distress, and to keep oneself unstained by the world.

 “Un-Expected”

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As we gathered together in Cheyenne Hills Church to celebrate the resurrection of our Lord and Savior, I stood but had NO JOY! I was robbed!! It was all I could do to just present myself to others with a half-painted smile. It’s the most joy-filled day of the year… or at least it should have been. But instead, I am emotionless yet again, I feel no pain, no connection and certainly no joy. This is my “Auto response”. It has engulfed me today. Swallowed me up like a small fish in front of a whale. I have no escape route. It closes in around me. I get sifted and sorted, my emotions are separated from my intellect, I can see the despair devouring my last stronghold… emotion is dried up, joy is no more… I become like an empty bag of flesh, I watch this thing swallow me, I pass into the darkness. I am slipping into the stomach, this hungry digestive organ… only to be come as fodder.  

Coping: When I was a small child, I learned how to create a coping mechanism. My “beast” is a coping mechanism to “hide from the real monsters” and not be physically absent from a situation. This same beast has haunted me for years. I don’t think anyone truly can understand what it is and how it erupts aside from me… My bride has seen it, it can literally take only seconds for my beast to devour me. The only other person that may come close to understanding is my younger brother, he was with me as I developed this “Great Beast”. It is My Hell, and it followed me to church today, snarling, snapping, biting, scratching and turning even the smallest act of kindness into a hungry devouring beast. This beast knows me all too well and this beast knows perfectly how to “push my buttons” … he is in Church, with me, on this Easter Sunday, he won’t leave me alone. 

 Our families have gathered for Good Friday service, the Church is much larger than what we are accustomed to, and nearly every seat is taken aside from the front row. We found our seats in row 2 and 3, a block of chairs on the far left of the Church. My loving bride gently held my Right hand. My oldest son Chris standing behind me with his loving bride Tiffain. Alex and Miranda carefully tending to their little bundle of “joy filled energy” named Sophia. At the other end of my row, Jacob stands with a worshipful face praising the Lord as Abigail stands filled with that same joy that energizes her special man. Between them and I stands Al, today he is nervously laughing throughout the entire service, people stop, turn, look and they don’t understand, I don’t understand. Why is he audibly laughing at what seems to be a very deep, meaningful sermon about salvation…. Is he laughing at the pastor? The pastor talks about the greatest sacrifice, is it funny? Is he laughing at the way the pastor looks on stage? Is he laughing at the fact that there is no one in front of us? I’m frustrated! It is hard for me to relax and take in the message. Why is he laughing? At what? Why so loud? Why at a serene time? As my body continues to ach from merely sitting still, the music is about to start, Al grabs his headphones and turns them on, why did he just turn them on? Now his music is playing through his headphones, and its incredibly loud in the near silent time of self-reflection, I can’t get it to stop… My phone alarm chimes in, it reminds me to check on Drax’s mealtime… but alarms don’t go silent, do they?… I’m stressed… 

My internal monologue reminds me: I’M THE ADULT! KEEP IT TOGETHER MISTER TOUGH GUY!!!

 We saw three great speakers telling a portion of the Good Friday story with a bit of perspective on the situation of good Friday. The first one spoke clearly and directly to the heart of the days leading up to Good Friday. Power and mighty words, I was glad to hear this man speak about this with reverence. The second speaker was a young man that talked about the burden of sin, and how even good people are deceived. He was captivating. This young man challenged us that there are many sitting in church that don’t know God but do know religion. They are “good” moral people, but they don’t serve God. This young preacher was caught up in passion for Jesus and delivered a message for all people about how and why we need salvation, and we need the one and only true God. Can I add this? This young preacher is my youngest son, Jacob, I am proud to know he delivered this message. 

As this service started to conclude, I was thinking that maybe Al was on track and calmed down…  I sat in my numbed heart and listened as the lead Pastor told a story of a man that asked a question, this story cut me to the very soul… I will paraphrase the story: 

A man walked into church one day and another “wiser man” asked in passing “So, how are you today?” to which the man replied, “I’m doing ok, considering the circumstances I am under” The wiser man stopped and asked “Well, why are you under there? Why are you under your circumstances?” 

Say what? Why am I under there? Why am I under there?… Did he just say “Why”? I couldn’t believe what I just heard…. It’s Simple, I am under here because I have no choice. No place safe to go. There is nowhere else to be… It’s where I belong… Devoured by the beast… Under my circumstances… 

The beast followed me all weekend, reminding me how worthless I am, how I am a failure as Als stepfather, reminding me how I have no purpose, reminding me how I am outdated, unneeded and in the way… every turn, the beast was there, every step was like walking in wet concrete, every physical pain was a stabbing reminder that I am nothing good… poor me!! Nobody likes me, everybody hates me, I guess I will go eat worms.

Today is Tuesday, I am back home after the 15 plus hour drive, I am exhausted. I sat and reflected on what happened, how it happened and why it happened. I know the physical pain of Fibromyalgia is a direct response to childhood trauma and the pain was overwhelming. I know how it’s hard to be joyful when you feel so much deep pain in the body, I think this maybe my “thorn”. I know the stress of being called names by Al… This had previously been a trigger for anger but now it is a stress trigger which in turn triggers a Fibro flare. I know that when I have a Fibro flare, I get some really bad “brain fog” which also adds to the stress because I can’t react quickly or precisely when Al starts telling me he was being stared at by a bunch of people and they were making faces at him… I need to make sure Al is safe, I need to manage Al so he doesn’t start screaming at people he thought were making faces at him while we drive down the street. I need to watch Al and move him outside at a moment’s notice… There he is, the beast is back, I was starting to think he got lost, but nope, he was just waiting for the right opportunity to ATTACK!

I need to apologize to my family today. The kids try but they really cannot understand why the patriarch of the family does this crazy disappearing act. “HEY MISTER…  Remember, you are the big tough guy, no pain is too much pain, no situation is more than you can handle, the beast is in your control at all times.” Then he gets out, THE BEAST IS IN MY HEAD!

So, back to Joy, I have every reason to be filled to overflowing with the joy of the resurrected Christ, the family that loves me, the challenges of being a stepfather and the assurance of salvation. Finding Joy is easy for me, keeping my joy is always a challenge and I don’t want to hide behind cheap excuses. I have no reason to let this beast steal my joy, yet I know if things go poorly for even a day, the beast will always be ready to take over and run wild. 

Maybe this trip was too much for Al, maybe I can handle this situation better, maybe, maybe, maybe this trip was too much for me? How do we know unless we keep trying?  We have taken Al on a few road trips, he is learning how to manage himself better but let’s be honest, it’s way harder to bring Al on a road trip than it is to leave him behind. It’s way easier to take a vacation with just my beautiful bride. Its way easier to shove Al into a home and pay some stranger to watch him… but if I took the easy route, would I be giving Al the best life? Would my sons see the man they have come to respect for never quitting? Would my wife respect me more for shrinking back away from our son because it’s easier? Would I be looking at myself in the mirror and say: “I’m so proud I was able to be selfish and do what I wanted without all the troubles?” Would I please God? Didn’t Jesus give his all for me? Don’t I owe it all to him anyway? Doesn’t he deserve my best? The song spins in my head “Jesus paid it all, all to him I owe.”

So why am I writing this Blog? It’s simple, I believe this blog will help someone one day to not give in to the beast that is stalking them, and it helps me process my troubles in life as well. 

I Hope this blog has found you well today but if it has found you looking down the throat of your very own pet beast, I hope this blog gives you hope, perspective and direction to persevere on your travels to find that joy I lost, that joy that God gives daily, that joy that is worth living for. 

God bless you this day and may he fill your cup with the joy found in the resurrected Savior.